"Despair and loneliness used to take me over when my mom died of
AIDS in 2002. Now my dad is still suffering from the horrible
disease. How I wish I could help relieve his pain."
The heart-rending plea comes from the diary of Zhang Chunxiao, a
10-year-old girl from Shangcai County in Central China's Henan
Province.
She's one of more than 2,000 children in Henan -- one of the
worst-affected regions -- struggling to face up to the nightmare of
life without one or both parents.
Orphaned children
In
the early 1990s, many poor farmers in Henan sold their plasma to
illegal blood stations, thus being infected with the deadly disease
and then spreading it to their spouses.
And while the children of parents whose lives have been claimed by
AIDS may themselves be healthy, many face a bleak future blighted
by stigma, ignorance and the lack of basic opportunities taken for
granted by most of us.
The bad news is that the number of children thus affected by the
devastating fallout of AIDS is climbing nationwide.
The good news is that a number of agencies are now pooling their
resources to try and tackle the menace and give these kids a
future.
Struggling against poverty, illness and stigma, this sector of
society poses a major challenge to the Chinese Government and
society at large.
According to the Joint United Nations Programme on HIV/AIDS, or
UNAIDS, 14 million children worldwide have become orphans through
AIDS. By 2010, that figure is expected to more than triple.
Government figures show there are an estimated 840,000
HIV/AIDS-infected people in China, most living in rural areas.
That implies an inevitable rise in the number of orphans.
"These children have witnessed their parents suffering from the
fatal disease," said Liu Wenxian, principal of Dinglou Primary
School in Shangcai. "As a result, most of them isolate themselves
and don't feel like communicating with others."
About 30 children in his school have lost one or both parents
through AIDS.
"Some of the children bear a deep hatred towards society as a
result," said Huang Yan, an official with the China Population
Welfare Foundation. He has visited some of the children affected by
the disease in Henan.
The loss of a parent is devastating to any child. But sadly the
tragedy of AIDS runs deeper. Many also face losing the opportunity
to continue with their studies and widespread discrimination. That
in turn drastically reduces their chances in life.
Helping hands
The government responded last year by outlining a policy to provide
free nine-year compulsory education for children orphaned by AIDS.
Poverty-stricken AIDS-infected families are also offered certain
subsidies.
A
number of provincial governments have followed the State's lead by
launching various programmes.
According to Wang Jumei, vice-governor of Henan Province, the local
government is determined to invest 10.25 million yuan (US$1.24
million) this year to establish more special orphanages for these
children.
Another 80 million yuan (US$9.8 million) will be allocated to build
primary schools and clinics as well as updating the infrastructure
in the worst AIDS-struck villages in Henan.
Members of the public are being encouraged to adopt orphans, she
added.
The local government offers a subsidy of 100 yuan (US$12) per month
for each orphan adopted.
But that is not enough.
"The government can help solve part of the problem through various
policies and subsidies. However, more should be done by all walks
of life," said China Population Welfare Foundation (CPWF) Secretary
General Miao Xia.
Last August, the foundation launched a project as part of the
Programme of Happiness to subsidize 93 healthy children who have
lost one or both of their AIDS-infected parents in the three
villages of Shangcai County in Henan. That was done with the
assistance of the Ford Foundation.
Besides providing these children with books and stationery, CPWF
has also posted three special teachers responsible for the
children's psychological well-being.
"They know well that their parents died of AIDS," said Zhao Juan,
one of the three special teachers in Shangcai.
"At first they would immediately turn silent when asked about AIDS.
But now most of them can face the topic."
Today these children live with their relatives, or surviving
parent, and study and play with local children.
"We teach them knowledge about prevention of AIDS and keep a close
eye on their mental state," Zhao said.
"Every week we gather them at least twice for special activities
such as skipping rope and drawing," said Li Guang, an official with
the Shangcai Family Planning and Population Commission, who is also
in charge of the project.
"During the harvest time, we organize local farmers to help their
families in the field."
After almost a year's work, the majority of the 93 children look
happier than before.
"We don't need too much help. I am happy with what I have got,"
said Liu Yali, a 10-year-old girl who has lost both of her parents
to AIDS.
"I
want to be a doctor when I grow up. I will do my best to eliminate
the deadly disease."
Said principal Liu: "They are independent and healthy both
physically and mentally."
CPWF's Miao acknowledged: "We are still fumbling our way to help
them since we have no model to follow."
But we hope this programme can set an example for others and help
accumulate more experience in coping with the problem."
A
small number of similar charity organizations such as Oxfam Hong
Kong and Operation Blessing in China as well as a few individuals
from both home and abroad have thrown their weight behind the
effort to protect this vulnerable group in society.
Teamwork needed
But while there are helping hands everywhere, they are scattered
and badly organized.
An
effective and continuous assistance programme is urgently
required.
"We notice that teamwork is still missing in the co-operation
between local government and the non-governmental organizations
(NGOs)," Miao said.
She pointed out that some government officials are even ignorant of
AIDS and have no idea how to mobilize efforts to help the
children.
Miao urged the establishment of an efficient social mechanism that
can pool the resources of the government, NGOs and individuals.
"Our foundation is trying to become an intermediary that helps
bring together all the various sources of help from the global
community," she said.
"I
don't think it is a good solution to have all these children living
together as we still lack professional nurses," Miao said.
"China is in great need of psychologists with expertise in this
field," she added.
Since a large number of AIDS patients live in rural areas short of
higher-educated people, the training of existing teachers becomes
all the more important.
Beijing-based Li Yan from Operation Blessing, a humanitarian
non-government organization, echoed Miao and said that adoption is
the best way to help those children.
"The business sector should also take part of the responsibility,"
according to William Valentino, a US volunteer in AIDS relief who
works in Bayer (China) Ltd.
He
calls for the establishment of a business coalition to work with
the government and NGOs in raising more funds for helping this
group of children.
"Chinese companies should play a more decisive role in the
coalition," he said.
Valentino also urges greater involvement from individual
volunteers.
Meanwhile, an official with the Shangcai Family Planning and
Population Commission, Guang Xiang, holds that education of the
children's relatives and local residents is needed as they are
closest to the youngsters affected.
"Their words and behaviour can render a huge influence on these
children," she explained.
But she also voiced concern that inappropriate care would result in
a sense of superiority due to the special treatment among the
children.
"We should create a healthy and equal environment with no
discrimination and we should not spoil them," she said.
Both Guan and Miao agree that these children should be told the
difficulties they are experiencing now are only part of life, and
that they are not alone in dealing with them.
"They should be taught to hold a positive view towards life and
society," Miao said.
Zeng Jinyan, a junior student from Renmin University of China,
believes the most important thing is to help them live on. She is
now also a member of Beijing Aiyuanhui, a NGO specialized in AIDS
relief.
"I
have been to AIDS-infected villages in Henan twice. There is still
a large group of children who are barely surviving," Zeng said.
"But I am glad to see that a lot of local villagers including some
AIDS patients have voluntarily organized themselves to help every
AIDS-infected household."
The top priority is in prevention and control of AIDS, especially
the dissemination of related knowledge among the public and
appropriate sex education among the young generations. "That is the
fundamental solution," Miao stressed.
Starting this year, the central government has initiated its
so-called "four free charges and one care" comprehensive project
for HIV/AIDS victims.
The project includes offering free medicine for HIV carriers, free
and anonymous HIV tests for villagers, free education for orphans
of HIV/AIDS victims, free pre-natal treatment of infected pregnant
women, and taking care of elderly people who have lost children to
AIDS.
The Shangcai Family Planning and Population Commission announced
early this year that it will launch an AIDS prevention programme in
2004 to popularize the knowledge about prevention and control of
AIDS.
Facts and figures on HIV/AIDS
According to UNAIDS, last year saw an additional 5 million people
worldwide infected with HIV/AIDS. At the same time, 3 million died
of AIDS.
The total number of HIV/AIDS-infected people around the globe has
risen to 42 million.
UNAIDS also stated that the total number of HIV/AIDS-infected
children throughout the world now exceeds 1.3 million.
The United Nations Children's Fund announced last December that
AIDS would become one of the five biggest threats to the world's
children in 2004.
It
said more than half of the AIDS-infected people in the world are in
the 25-or-younger age bracket.
China now has nearly 840,000 HIV/AIDS-infected people, including
80,000 AIDS patients, the second largest group in Asia.
The Programme of Happiness -- Care for Special Children campaign
was launched in August 2003 to help 93 healthy children one or both
of whose parents had died of AIDS to continue their schooling in
the villages of Wenlou, Shifo and Liuzhuang in Shangcai County, in
Henan Province.
The project was initiated by the China Population Welfare
Foundation with financial help from the Ford Foundation.
Between May 29 and June 1, 20 of these children came to Beijing for
a short visit under the sponsorship of Bayer (China) Ltd.
All donations can be deposited to the following account of China
Population Welfare Foundation:
RMB Account No: 0200-0029-090-144-072-53
Opening Bank: Xinjiekou Office of Beijing Xinjiekou Branch of China
Industrial and Commercial Bank
Foreign Currencies' Account No: 000-395-080-910-14
Opening Bank: Bank of China
China Population Welfare Foundation
Address: 12 Dahuisi, Haidian District, Beijing, China 100081
Tel: 86-10-62187613
Fax: 86-10-62173494
Website: www.cpwf.org.cn
(China Daily June 9, 2004)
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